Skip to main content

Baby Lily

I want to introduce you to Baby Lily.  

Lily and her feeding tube, oh and her head garnish!

This is the newest member of the Weeks family.  Lily was born about two weeks ago with a birth defect.  Her parents were told part way through the pregnancy that Lily had "D transposition of the great arteries".  In layman's terms, this means the two major blood vessels in her heart had not developed properly.  Without surgery shortly after birth, Lily would not survive.

Lily's parents, James and Tobi, are devoted Christians.  After a few days of adjustment, they began telling key people about the situation and the prayers went up to the Lord.  As more people were made aware, more prayers went up.  As the pregnancy progressed and they made trips to UVA to meet the teams, more prayers went up.  When Tobi went into labor, more prayers went up.

About a week after her birth, Lily underwent open heart surgery.  She did very well, but was left with an open chest wound, on the ventilator and multiple medications.  Then we all waited for progress and we prayed even more.  Each day, Tobi would post the updates.  No swelling occurred and they closed the wound.  The ventilator was removed.  The medications were stopped.  Even the oxygen was shut off.  We rejoiced with each step and continued to, you guessed it, pray for more.

At one point during her hospital stay, her dad said to her mom, "There must be something wrong, she never cries." I laughed when Tobi texted me to tell me.  "He will regret that statement soon enough!" I responded.  She said that is exactly what she told him and then said, "She is so peacful, like she knows everything is ok." Lily had no idea how much worry we all had experienced from the day the diagnosis was made to that very moment.  She just went with the flow, made it threw every step of the process and reached each goal earlier than expected.

Lily rested in the arms of the Lord as he carried her through this first few weeks.  We are so grateful for the mighty healer.  His ways are perfect.

We love you Baby Lily!  Enjoy your life!

In His service,
Mally





Comments

Popular posts from this blog

It was a Monday

Well, yesterday was my first missed day posting to the blog.  It was truly a Monday.  We moved from my parents house into our "lakefront" property at Lake Yale Conference Center.  For those of you with no idea where Lake Yale is, I have posted a link.   http://www.lybcc.com/   A 27ft camper is now home and we feel really blessed to have been given this place to stay.  It was definitely a challenge to fit everything inside.  I guess I should clarify, we did not bring everything.  We downsized a bit on the clothes, doubled up on each hanger, left a few of Steve's books behind and the harp is staying at Mom's for now.  It took two trips to get everything here.  Just as I pulled in, my parents pulled in behind me.  They had been to a doctor's appointment and stopped by to see the new digs.  My mom marched right up to the sink and began washing dishes for me.  I unloaded my car and attempted to figure out where to put ev...

No more memories

 It has been a long 16 months since my last blog post.  Too much has happened...too much. The most significant event was the passing of my mother last September.  It was truly a heart wrenching experience.  Many of you who know me know that my relationship with my mother was difficult.  We loved each other very much, but we had a difficult time spending long periods of time together.  We were both strong willed, independent and opinionated.  She wanted her way and I wanted mine.  Ultimately this caused way too many disagreements and misunderstandings.  These times of turmoil I now realize were a total waste of time for us both.   In those last days, sitting in her hospital room, it became all too apparent we had spend far too many times being frustrated with each other, arguing or not speaking.  When they told us we would have 2 to 12 months on hospice, I resolved myself to make it the best time we had ever had....

Time stolen

Time is quickly stolen away as I realize it has been ten days since I last put my thoughts into a posting.  My weekdays are consumed with work and I am so mentally exhausted at the end of the 10-12 hours, I cannot think of anything except doing nothing.  The weekends are a dash of running errands, church activities and trying to cram time in with family and friends.  When I woke this morning, I could not believe Saturday and Sunday had already come to a close.  This morning actually consisted of my husband waking me at eight minutes after seven.  For a point of reference, I usually leave the house at 7:05 am each day.  That should give you a quick understanding of how my Monday started with a bang.  Before I could get to the car, one of my employees was calling to tell me she would be out sick today.  I tried to force my brain into action as I reviewed what else was going on today.  It had already escaped my memory that I had one employee c...